LadyLola
Newbie

Hi all.
This is my first post and concerns my 16yr old son. It may be a long one so hold onto your hats!
I have a mild form of hypermobility condition, and it was declared on his medical form. He does not have it.
As proof of discharge from his paediatricIan for a different condition (not related) we supplied a letter from the paeds doctor. It also said on the letter that my condition had been discussed (he asked me why I was limping) and that he had checked son 'just in case'while he was there. The letter states that son is not hypermobile and has no symptoms of the condition.
It is worth pointing out that son has never seen a doctor for anything to do with the condition, it was an as you're here we'll check type thing. It is not on his medical records anywhere.
We went to the medical today, and the doctor said that Josh was not hypermobile in any way after doing the Beighton test. He then said he should be referred to see a specialist about the condition and was going to declare him TMU.
The diagnostic tool for my condition is the Beighton scale. If the paediatrician has tested him and said he hasn't got it, and the medical doctor has said he isn't hypermobile using the Beighton scale (a big part of having a hypermobility condition!), and he's never seen a GP for the condition, how can he be TMU?
I'm confused at how he now has to wait months for a specialist (there are 5 centers in the country that deal with it with very long waiting lists) to confirm he hasn't got something the medical doctor that's referring him and a paediatrician have said he hasn't got. He has been made TMU for something he doesn't have!!
Any advice would be great and sorry for the rant, (little bit angry and confused by it).
Hope you are all well.
This is my first post and concerns my 16yr old son. It may be a long one so hold onto your hats!
I have a mild form of hypermobility condition, and it was declared on his medical form. He does not have it.
As proof of discharge from his paediatricIan for a different condition (not related) we supplied a letter from the paeds doctor. It also said on the letter that my condition had been discussed (he asked me why I was limping) and that he had checked son 'just in case'while he was there. The letter states that son is not hypermobile and has no symptoms of the condition.
It is worth pointing out that son has never seen a doctor for anything to do with the condition, it was an as you're here we'll check type thing. It is not on his medical records anywhere.
We went to the medical today, and the doctor said that Josh was not hypermobile in any way after doing the Beighton test. He then said he should be referred to see a specialist about the condition and was going to declare him TMU.
The diagnostic tool for my condition is the Beighton scale. If the paediatrician has tested him and said he hasn't got it, and the medical doctor has said he isn't hypermobile using the Beighton scale (a big part of having a hypermobility condition!), and he's never seen a GP for the condition, how can he be TMU?
I'm confused at how he now has to wait months for a specialist (there are 5 centers in the country that deal with it with very long waiting lists) to confirm he hasn't got something the medical doctor that's referring him and a paediatrician have said he hasn't got. He has been made TMU for something he doesn't have!!
Any advice would be great and sorry for the rant, (little bit angry and confused by it).
Hope you are all well.